Patient groups and educational resources
The groups and websites listed below provide support and information to patients with cancer and their caregivers.*
- Cancer Support Community (CSC)
- Provides information about cancer and support to patients, family, friends, and caregivers.
- Provides free, professional support services for caregivers and families, as well as caregiving information and additional resources.
- Caregiver Action Network (CAN)
- Provides education, peer support, and resources to caregivers across the country free of charge.
- Caring From a Distance
- Provides long-distance caregivers with useful tools for coordinating services, assessing long‑term care options, and evaluating available benefits.
- Family Caregiver Alliance (FCA)
- Offers services, education programs, and resources for caregivers providing long‑term care at home.
- MyLifeLine is an online communication platform connecting patients and caregivers from across the world at no cost.
- National Alliance for Caregiving
- Conducts research and policy analyses and works to increase public awareness of family caregiving issues.
- Well Spouse Association
- Offers peer-to-peer support and educates healthcare professionals and the general public about the special challenges and unique issues of caregivers.
- American Cancer Society
- A non-profit society focused on researching and eliminating cancer.
- Provides comprehensive, oncologist-approved information from the American Society of Clinical Oncology, with support from the Conquer Cancer Foundation.
- Leukemia & Lymphoma Society
- Dedicated to curing leukemia, lymphoma, Hodgkin's disease and myeloma, and improving the quality of life of patients and their families.
Financial and other support
- Cancer Financial Assistance Coalition (CFAC)
- CFAC is a coalition of organizations helping cancer patients manage their financial challenges.
- Centers for Medicare and Medicaid Services
- Provides resources for patients and caregivers, highlighting information about billing, navigating healthcare, support groups, and care options.
- Corporate Angel Network
- Provides both private and corporate airline transport to eligible patients with cancer at no cost.
- Provides information on disability benefits, civil rights, community life, education, and employment.
- Health Insurance Marketplace
- Provides information on enrolling in a health plan, determining benefit qualifications, and investigating ways to save money on healthcare expenses.
- National Patient Travel Center
- Provides free or discounted ground and airline transportation to patients.
- Patient Advocate Foundation (PAF)
- Helps patients with chronic illnesses to access approved healthcare services and medicines, find resources to support cost‑of‑living expenses while in treatment, and manage or reduce out‑of‑pocket medical debt.
About ELZONRIS® (tagraxofusp-erzs)
ELZONRIS is a prescription medicine used to treat blastic plasmacytoid dendritic cell neoplasm (BPDCN) in adults and pediatric patients 2 years and older.
IMPORTANT SAFETY INFORMATION
ELZONRIS can cause serious side effects, including:
Capillary Leak Syndrome (CLS). ELZONRIS can cause fluid to leak from small blood vessels into your body's tissues. This is called “Capillary Leak Syndrome.” CLS can quickly cause you to have symptoms that may become life-threatening or fatal (ie, lead to death). Get emergency medical help immediately if you develop any of the following symptoms:
- fast weight gain
- swelling of your face, arms, hands, legs, or feet
- shortness of breath or difficulty breathing
- low blood pressure (dizziness or lightheadedness, headache, feeling tired, or shortness of breath)
Your healthcare provider will check your weight and test your blood before you receive each dose of ELZONRIS and as needed during treatment.
- Hypersensitivity reactions may occur with ELZONRIS. Symptoms may include rash, itching (pruritus), wheezing, or swelling in your face, including around your eyes and/or in and around your mouth
- Liver damage is usually detected through blood tests. Symptoms may include feeling tired (fatigue), loss of appetite, yellowing of your skin or the whites of your eyes (jaundice), or upper right abdominal pain or discomfort
Your healthcare provider will periodically test your blood while you are on ELZONRIS to check for liver damage.
Contact your healthcare provider immediately if you have any of these symptoms.
Getting medical treatment right away may help keep these problems from becoming more serious.
If you have any side effects during treatment with ELZONRIS, your healthcare provider may hold your treatment for a period of time or completely stop your treatment with ELZONRIS.
The most common side effects of ELZONRIS include CLS, nausea, feeling tired (fatigue), swelling in your legs or feet, fever, and weight gain.
These are not all of the possible side effects of ELZONRIS. If any new side effects start or an existing one gets worse, contact your healthcare provider immediately. For more information, talk to your treatment team.
Be sure to tell your treatment team about:
- all of your medical conditions, including if you
are pregnant or plan to become pregnant. ELZONRIS may harm your unborn baby
- If you are a female who can become pregnant, you should use effective birth control during ELZONRIS treatment and for at least 1 week after the last dose
- Tell your healthcare provider right away if you become pregnant during treatment with ELZONRIS
- are breastfeeding or plan to breastfeed. It is not known if ELZONRIS passes into breast milk. You and your healthcare provider should decide if you will receive ELZONRIS or breastfeed. You should not do both
- are pregnant or plan to become pregnant. ELZONRIS may harm your unborn baby
- all of the medicines you take, including prescription medicines, over-the-counter medicines, vitamins, and herbal supplements
Please see full Prescribing Information, including Boxed WARNING, for ELZONRIS to learn more.